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Family or Friend Continued Caregiver Distress
Alternate Name
Percentage of long-stay home care clients who reported that their primary informal caregiver expressed continued feelings of distress, anger or depression over a six-month period.
This indicator measures the percentage of long-stay home care clients, of all ages, whose primary informal caregiver experienced distress, anger or depression in relation to their caregiving role, as reported in at least two consecutive client assessments (six months apart). It includes only clients who had at least one unpaid informal caregiver and received home care for at least six months. A lower percentage is better.
Indicator Status
HQO Reporting tool/product
Public reporting
Unit of Measurement
Calculation Methods
Numerator divided by the denominator times 100
Numerator including inclusion/exclusion

The number of clients with informal caregivers who reported distress, anger or depression in relation to their caregiving role, in two consecutive home care client assessments.

The following data elements are used:

G2c Primary caregiver expresses feelings of distress, anger or depression.

Denominator including inclusion/exclusion

The number of home care clients with at least two consecutive assessments and at least one informal caregiver.

The following data elements are used:

G1ea (primary informal caregiver) lives with client. An informal caregiver ("caregiver") may be a family member, friend or neighbour (but not a paid provider) who helps the home care client with activities of daily living, such as meal preparation, housework, transportation, bathing and dressing, or who provides advice or emotional support to the client.

General Exclusion Criteria:

To prevent capturing outcomes that result from the care received outside of the home care settings, assessments are excluded according to the following criteria:

  • if case open date is missing and Reason for Assessment is "Initial Assessment"
  • if the assessment took place within 60 days of when the referral was first received/case open date
  • if the assessment was completed in a hospital setting
Adjustment (risk, age/sex standardization)- detailed

This indicator is risk adjusted. Adjustment factors:

  • Age >= 65
  • 12 Months or less between Assessments
  • Cognitive Problem CPS +1
  • IADL difficulty
  • Difficulty with locomotion
  • Decision Making Difficulty
  • Sadness
  • Difficulty housework
  • ADL Decline
  • Poor Health
  • Unstable Condition
  • Hospital Stays
Data Source
Home Care Reporting System (HCRS)
Data provided to HQO by
Canadian Institute for Health Information (CIHI)
Reported Levels of comparability /stratifications (defined)
Region, Time
Comments Detailed
Data are based on information from mandatory Resident Assessment Instrument - Home Care (RAI-HC) assessments. The RAI-HC is a standardized assessment that is completed for long-stay home care clients (those requiring services for at least 60 consecutive days). Assessments are completed at authorization for home care services and at least once every six months thereafter. According to the Data Quality Documentation, Home Care Reporting System, 2011-2012, RAI-HC has undergone significant international reliability and validity testing that confirms it has high reliability and validity. Furthermore, the Home Care Reporting System (HCRS) data have been evaluated and found to be of generally high quality and exhibit expected patterns of consistency both within and across assessment records. Refer to Home Care Reporting System (HCRS) RAI-HC Output Specifications 2016-2017 for further detail on indicator calculation.
The term "client" is used in public reporting to denote an individual who received home care services. Other organizations may use the term "patient". Both terms refer to the same home care recipients. "Family or friend caregivers" may also be referred to as "unpaid caregivers" or "informal caregivers".
Home Care
Health Human Resources
Home Care Reporting System (HCRS)
Publish Datetime
20/11/2018 15:21:00