Percentage of long stay home care patients whose primary informal caregiver experienced distress, anger or depression in relation to their caregiving role or were unable to continue in that role (Retired)

Percentage of long-stay home care patients with a primary unpaid caregiver whose caregiver is unable to continue in caring activities or expresses feelings of distress, anger or depression

Percentage

Numerator divided by denominator times 100

All clients with a primary caregiver who is unable to continue in caring activities AND/OR All clients with a primary caregiver who expresses feelings of distress, anger or depression.

The following data elements are used: G2a A caregiver is unable to continue in caring activities - e.g. decline in the health of the caregiver makes it difficult to continue G2c Primary caregiver expresses feelings of distress, anger or depression. 

All clients with a completed RAI-HC assessment who have primary caregiver.

The following data elements are used: G1ea (primary informal caregiver) Lives with client An informal caregiver ("caregiver") may be a family member, friend or neighbour (but not a paid provider) who helps the home care patient with activities of daily living, such as meal preparation, housework, transportation, bathing and dressing, or who provides advice or emotional support to the patient. 

None

Home Care Reporting System (HCRS)

Canadian Institute for Health Information (CIHI)

Region, Time

The results are derived from RAI-HC assessment information in the HCRS database. Therefore, the results are representative of long-stay home care patients receiving publicly funded home care (i.e., home care patients who require care for more than 60 days represent approximately half of publicly funded home care patients. The remaining population are short-stay home care patients who require short-term care while they recover from injury or surgery.) Distress, anger, or depression and ability to continue providing care are subjective measures. Results may underestimate true rates of distress if some informal caregivers do not want to admit that they feel burdened by having to care for a friend or family member or if they do not exhibit obvious signs of distress. Similarly, cultural differences exist that can affect one’s perception of distress caused by caring for a friend or family member since it is simply accepted as something that should be done, regardless of the stress it may cause. Data are not risk adjusted for factors associated with rates of distress, such as cognitive impairment in the patient, hours of informal care provided by the caregiver, or hours of formal care provided to the patient. Includes patients of varying levels of complexity, including palliative patients.

This indicator was jointly developed by interRAI and the Canadian Institute for Health Information (CIHI). The caregiver may live with the patient or the caregiver may visit the patient regularly or respond to needs that the patient has. A home care patient may have more than one person providing unpaid support. The primary informal caregiver is the person who is most helpful to the patient and the person who the patient can rely most upon. The questions in the RAI-HC asking about the caregiver status are meant to assess the reserve of the informal caregiver support system. The questions are posed to the home care patient and informal caregiver separately. The current situation and the projected future needs are both considered. G2a. A caregiver is unable to continue in caring activities The caregiver, client, or assessor believes that a caregiver(s) is not able to continue in caring activities. This can be for any reason, for example: lack of desire to continue, geographically inaccessible, other competing requirements (child care, work requirements), and personal health issues. G2c. Primary caregiver expresses feeling of distress Primary caregiver expresses, by any means, that he/she is distressed, angry, depressed, or in conflict because of caring for the client.

17/04/2018 14:55:00