Patient-involvement-in-decisions-about-their-care

INDICATOR NAME

Name

Patient involvement in decisions about their care

Alternate Name

Percentage of people aged 16 or older who reported that their primary care provider always or often, involved them as much as they wanted in decisions about their care and treatment.

INDICATOR DESCRIPTION

Description

This indicator shows the percentage of people aged 16 or older who reported that their family doctor, or someone else in their office, often or always involved them as much as they wanted in decisions about their care and treatment, in Ontario. People who are involved in decisions about their own care generally have a better experience with the health system. A higher percentage is better.

Indicator Status

Active

HQO Reporting tool/product

Public reporting

Dimension

Patient-centred

Type

Process

DEFINITION AND SOURCE INFORMATION

Unit of Measurement

Percentage

Calculation Methods

Numerator divided by the denominator times 100

Numerator including inclusion/exclusion

Weighted number of respondents who answered "always" or "often" to the following question:

When you have an appointment with your [fill fd_type] or someone else in their office, how often do they involve you as much as you want to be in decisions about your care and treatment?

- Always

- Often

- Sometimes

- Rarely

- Never

- It depends on who they see and/or what they are there for

- No decisions required on care or treatment/not applicable

- Don't know

- Refused

Denominator including inclusion/exclusion

Weighted number of respondents who reported having a primary care provider and answered the following survey question.

When you have an appointment with your [fill fd_type] or someone else in their office, how often do they know important information about your medical history?

- Always

- Often

- Sometimes

- Rarely

- Never

- It depends on who they see and/or what they are there for

- Never saw provider or anyone in their office

- Don’t know

- Refused

Exclusions:

Respondents who answered “it depends on who they see and/or what they are there for,” “never saw provider or anyone in their office”, “don’t know”, or who refused to answer.

Adjustment (risk, age/sex standardization)- detailed

None

Data Source

Health Care Experience Survey (HCES)

Data provided to HQO by

Ministry of Health

Reported Levels of comparability /stratifications (defined)

Age, Education, Immigration, Income, Language, Province, Region, Rurality, Sex

RESULT UPDATES

Indicator Results

Click here to view Health Quality Ontario results for this indicator

OTHER RELEVANT INFORMATION

Caveats and Limitations

Only people aged 16 years and older can complete the survey People living in institutions, in households without telephones, and those with invalid/missing household addresses in the Registered Persons Database (RPDB) are excluded. Respondents who were unable to speak English or French or were not healthy enough (physically or mentally) to complete the interview were not surveyed. The Health Care Experience Survey (HCES) on which the indicator data are based has been affected by reduced surveying in 2023. The 2023 data are unreliable for some indicator results, so those are not reported. Please note that results for 2023 are based on data collected from April to December 2023 rather than during the entire calendar year.

Comments Detailed

The results are weighted to reflect the design characteristics of the study and post-stratified by age and sex to reflect the Ontario population. In addition, geographic region and community weighting is applied. References ‘fill fd_type’ in the questionnaire can mean a family doctor, GP, nurse practitioner, or anyone else the respondent said they get their primary care from. The education stratification analysis is done among those aged 25 and older. Urban/rural status is defined using Statistics Canada's Statistical Area Classification. Household income analysis does not consider household composition.

Footnotes

i Health Council of Canada. (2011). How Engaged Are Canadians in their Primary Care? Results from the 2010 Commonwealth Fund International Health Policy Survey. Canadian Health Care Matters, Bulletin 5. Toronto: Health Council of Canada. ii Coulter, A. & Ellins, J. (2006). Patient-focused interventions: A review of the evidence. London, England: The Health Foundation and Picker Institute Europe. Available from: www.health.org.uk/publications/patient-focusedinterventions/ iii Parsons, S., Winterbottom, A., Cross, P., Redding, D. (2010). The quality of patient engagement and involvement in primary care. London, England: The King’s Fund. Available from: www.kingsfund.org.uk/current_projects/gp_inquiry/ dimensions of_care/patient_engagement.html iv Rask K.J., Williams M.V., Parker R.M., McNagny S.E. Obstacles Predicting Lack of a Regular Provider and Delays in Seeking Care for Patients at an Urban Public Hospital. Journal of the American Medical Association. 1994;271(24):1931-33.