Patient involvement in decisions about their care and treatment

Percentage of people aged 16 or older who report that their primary care provider always or often, involved them in decisions about their care.

Percentage

Numerator divided by the denominator times 100

Weighted number of respondents who answered "always" or "often" to the following question:

When you see your [fill fd_type] or someone else in their office, how often do they involve you as much as you want to be in decisions about your care and treatment?

- Always

- Often

- Sometimes

- Rarely

- Never

- It depends on who they see and/or what they are there for

- Not using/on any treatments/not applicable

- don't know 

- refused

Weighted number of respondents who reported having a primary care provider

Exclusions:

People answered the question:

- never

- volunteers It depends on who they see and/or what they are there for 

- volunteers no decisions required on care or treatment/not applicable 

- don't know 

- refused

None

Health Care Experience Survey (HCES)

Ministry of Health and Long-Term Care (MOHLTC)

Age, Education, Immigration, Income, International comparison, Language, Province, Region, Rurality, Sex

Only people aged 16 years and older can complete the survey People living in institutions, in households without telephones, and those with invalid/missing household addresses in the Registered Persons Database (RPDB) are excluded. Respondents who were unable to speak English or French or were not healthy enough (physically or mentally) to complete the interview were not surveyed.

Weighted to reflect the design characteristics of the study and post-stratified by age and sex to reflect the Ontario population. In addition, the LHIN and community weighting is applied. References ‘fill fd_type’ in the questionnaire can mean a family doctor, GP, nurse practitioner, or anyone else the respondent said they get their primary care from. In Measuring up international and provincial comparisons are reported as well. The data source for international and provincial comparisons is Commonwealth Fund International Health Policy Survey of Adults. The survey questions is "When you need care or treatment, how often does your regular doctor or medical staff you see involve you as much as you want to be in decisions about your care and treatment?". The CMWF survey population is adults aged 18 and older. A similar indicator is included in the primary care QIP as well. The data source for it is local data collection. The question advised in the QIP guidance document is: When you see your doctor or nurse practitioner, how often do they or someone else in the office involve you as much as you want to be in decisions about your care and treatment? The education stratification analysis is done among those aged 25 and older. Urban/rural status is defined using Statistics Canada's Statistical Area Classification. Household income analysis does not consider the household composition.

i Health Council of Canada. (2011). How Engaged Are Canadians in their Primary Care? Results from the 2010 Commonwealth Fund International Health Policy Survey. Canadian Health Care Matters, Bulletin 5. Toronto: Health Council of Canada. ii Coulter, A. & Ellins, J. (2006). Patient-focused interventions: A review of the evidence. London, England: The Health Foundation and Picker Institute Europe. Available from: www.health.org.uk/publications/patient-focusedinterventions/ iii Parsons, S., Winterbottom, A., Cross, P., Redding, D. (2010). The quality of patient engagement and involvement in primary care. London, England: The King’s Fund. Available from: www.kingsfund.org.uk/current_projects/gp_inquiry/ dimensions of_care/patient_engagement.html iv Rask K.J., Williams M.V., Parker R.M., McNagny S.E. Obstacles Predicting Lack of a Regular Provider and Delays in Seeking Care for Patients at an Urban Public Hospital. Journal of the American Medical Association. 1994;271(24):1931-33.

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